Raynauds Scleroderma Global Patients: Raynauds Awareness Month - October - Show Your Colours #RaynaudsFreeWorld

Raynauds Scleroderma Global Patients

Welcome to my blog - I was diagnosed in 1997, and given a 15month prognosis. In 1998 I became a patient at the Scleroderma Unit, The Royal Free Hospital. The cause and cure to both Scleroderma and Raynaud's remain unknown. Please donate to help fund medical research where 100% of your donation will be used for research purposes only. https://www.justgiving.com/fundraising/sclerodermaunit-royalfree #SclerodermaFreeWorld #RaynaudsFreeWorld #RareDisease

Wednesday, 26 October 2016

Raynauds Awareness Month - October - Show Your Colours #RaynaudsFreeWorld

Raynauds Awareness Month - October
Show Your Colours
#RaynaudsFreeWorld

http://sclerodermanews.com/blog/2016/10/26/october-raynauds-awareness-month-show-your-colors

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Posted by Cosmic Fairy444 at 07:33

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Labels: medical research, numbness, pain, raynauds, raynauds awareness month October, Show Your Colours For Raynauds Awareness, The Royal Free Hospital, throbbing, tingling, vasodilation, vasospasm

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About Me

Cosmic Fairy444: I hope that you enjoy my blogs:

cosmicfairy444.blogspot.co.uk
raynaudsscleroderma.blogspot.co.uk

Please donate to help raise funds for Professor Denton's vital medical research into the rare disease, systemic sclerosis (scleroderma) and Raynaud's, at the Scleroderma Unit, Royal Free hospital.
https://www.justgiving.com/sclerodermaunit-royalfree
or
Text: SURF97 £5 to 70070

I dream that the cause and a cure will be found in my lifetime, and I hope to use the remainder of my life on this quest. I am truly blessed to be under the care of the scleroderma world trail blazer, Prof Denton, throughout this 19 year white knuckle diagnostic ride.

In 1997 I was diagnosed with the chronic, autoimmune, rare disease, scleroderma, and given a 15 month prognosis, soon to be wheel chair bound. I was advised by my medical professional, at that time, to give up on my dream of being a barrister.

12 months later, I changed my medical professional to an international expert of the diagnosis and kept my dreams alive! I qualified as a self employed practising barrister on 1st March 2004, and ceased my 7 years chemotherapy regime. Sadly, I had to accept that the physical requirements of a 60 hour week role, were too much for my body.

Almost 18 years to the day from having first dragged my body to the Scleroderma Unit at The Royal Free Hospital, in Nov 2016, I was delighted to hear Prof Denton confirm to me that 'My Skin is now Cured From Scleroderma'.
http://raynaudsscleroderma.blogspot.co.uk/2017/04/my-skin-is-cured-from-scleroderma.html

To read more of my daily reality:
http://www.eurordis.org/news/living-with-scleroderma-and-raynauds-disease

I have transferred my professional qualifications and skills to being an advocate on the world stage for scleroderma and rare disease, a role I feel truly humbled by.

http://sclerodermanews.com/nicolas-scleroderma-blog/

http://pro-vide-law.co.uk/author/nicola-whitehill/

https://plus.google.com/communities/115644437712711107914

https://www.facebook.com/RaynaudsSclerodermaGlobal/

https://www.facebook.com/Scleroderma-Unit-Royal-Free-Hospital

https://www.facebook.com/Raynauds-Unit-Royal-Free-Hospital

https://www.facebook.com/healinglovingsclerodermawithrealfood

I am an expert adviser to NHS England CRG Specialised Rheumatology, The British Society for Rhuematology (BSR), The European Medicines Agency (EMA), European Rare Diseases Organisation (Eurordis), RareDiseaseUK. I am a member of the World Scleroderma Foundation.

I feel very grateful that I have the label 'medical miracle' and wish to share some of my survival techniques and cosmic fairy tale to help others, with my coping strategies.

I hope to be a source of reference and education, in relation to the rare disease Raynaud's Scleroderma, via my RaynaudsScleroderma blog.

I hope that by reading a post on this blog, has made you feel good.
~ Living the dream, scleroderma style, hoping for a cure
#SclerodermaFreeWorld #RaynaudsFreeWorld

- Be the example you want to see -

M. Gandhi

View my complete profile

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