Friday 12 April 2024

Scleroderma Unit, Royal Free Hospital, Family Day 2024



Scleroderma Family Day - Saturday 18th May 2024

In person meeting

The Atrium, ground floor Royal Free Hospital, Pond Street, London NW3 2QG

Chair: Professor Chris Denton




Dame Carol Black, Profs Chris Denton & David Abraham

10:30 11:00

Scleroderma and the nephrologist

Edward Stern


Lung fibrosis

Nina Goldman


PH - New treatments and Beyond DETECT

Gerry Coghlan

Voon Ong/Chris Denton

12:00 12:30

Updating the BSR guidelines for systemic sclerosis


Lunch Break

14:00 14:30

International perspective

Stefano Rodolfi - Milan, Italy


Gastrointestinal scleroderma the role of the physiotherapist

Hannah Beecham-Timmington

15:00 15:30

NHS Pathways, NICE, and drug access

Bridget Griffiths 

Read about scleroderma research Royal Free London NHS Foundation Trust: 

This year, 2024, I will have spent over half of my life, 27 years, living with a scleroderma (systemic sclerosis) and Raynaud's diagnosis, and all that entails. 🤢


Eternally grateful to Dame Professor Carol Black and Professor Chris Denton Royal Free London NHS Foundation Trust 😇

Please donate to medical research to identify a cure and the cause of scleroderma, at the Scleroderma Unit Royal Free Hospital. Every penny will be used for research purposes only. Thank You 🙏

There are several ways as to how you can donate: 

Via the Royal Free Charity:

Scroll down to tick box 'your donation will be used where the need is greatest. However please tick this box if you would like to donate to a specific appeal or fund'. Click on the box to reveal 'a where would you like to give to' drop down menu. Scroll down to the Scleroderma and Raynaud's research option and click on this option.

Leave a gift in your Will : 

The Royal Free Charity provides a free Will writing service ☝️

Just Giving Page : 

Thank You 🙏 

To Read My Articles:  

Gift in My Will, Click here

Planning for the Future: Click here  

Celebrating 20 years of being a patient at the scleroderma unit, 2018, Click Here 

#SclerodermaFreeWorld #RaynaudsFreeWorld 
#Research #Scleroderma #SystemicSclerosis #Raynauds #Autoimmune #RareDisease #NoCure #UnknownCause #LifeChanging #ConnectiveTissue