It is affected in most scleroderma patients.
Surprisingly, my Raynaud's symptoms developed later.
|Global Scleroderma Trailblazer Prof Denton and I, Sept 2017.|
I have a daily symptom management routine that includes bathing and moisturising my skin.
For the bath, I use liquid petroleum (Oilatum Plus) and then, after towel drying, I use Hydromol emollient cream all over my body.
I refused to undergo a skin biopsy due to the time of year, as winter is my nemesis season.
The Effudix cream had caused my skin to inflame and break, bringing pain, and causing discomfort. However, these symptoms subsided after a few weeks.
I was stunned and overjoyed, and what’s more – no biopsy!
|Post biopsy Sept 2016|
Lucky, in that, I have minimal internal organ damage. Lucky, in that, I continue to survive.
- Gum recession
- Soft tissue and ulcers
- Sclerodactyl hands
- Gastrointestinal issues
100% of your monies will be used for medical research purposes only. Thank You.
Living the dream, scleroderma style.
An edited version of this article was published here, in my Column with Scleroderma News. November 2018.
Planning for the Future, Click here
Rare Disease Day 2020:
Listen to my interview with John Smeeton, (Silver Fox), from the Royal Free Radio, here
Raise awareness and donate to medical research, order your #SclerodermaFreeWorld #RaynaudsFreeWorld tshirt here
Rare Disease Day 2020: NIHR 'Research gives hope to Rare Disease patients', Click here
Rare Disease Day 2019: 11am 97.4RockFM headlines, NO CURE, Click here
2017 Rare Disease Day Medical Research
2016 Rare Disease Day Patient Voice
provides the brightest light,
for the illumination of
the rare disease patients’ plight.
To read about medical research at the scleroderma unit, Click here
If we only had more RESEARCH investment for Scleroderma, Raynaud's, Autoimmune Rare Disease, Click here
The Importance of Medical Research and Awareness to the Scleroderma, Raynaud's, Autoimmune Rare Disease patient, Click here
2018 Scleroderma Awareness Raising and Medical Research, Click here
Unmet Medical Needs, Click here
Calcinosis Video, Click here
The scleroderma tooth fairy, Click here
Skin Cancer and scleroderma, Click here
|Prof Chris Denton and I, Sept 2017|
This year, 2020, I am celebrating 22 years of being a patient at the Scleroderma Unit, The Royal Free Hospital - a world leading expert specialist, research centre.
|Chat Magazine May 2019|
|James Carver, myself, Prof Chris Denton|
I am immensely grateful to James Carver, former MEP, for organizing this event in memory of his late wife Carmen, who sadly passed from Scleroderma.
|The global Raynaud's trailblazer - Dr Howell and I, Sept 2017|
#SclerodermaFreeWorld #RaynaudsFreeWorld #Research
100% of your monies will be used for medical research purposes only. NO wages or admin costs. Thank You.