It is important to emphasise that Raynaud’s can also present on its own, without any autoimmune involvement.
The colour change to the affected body part, indicates lack of blood to those areas, which, upon its return, feels similar to red hot, fine needles being stabbed in the area.
Personally, I did not tolerate either of these drugs, and after 3 bouts of Iloprost, I made a solemn promise to myself that I would never have it again, due to the intense side effects, including my head feeling as though my skull was going to explode, and oversensitivity to light.
I wear lots of layers as well as, gloves and Ugg boots all year round.
|Hottest day of 2013 - I need to wear Ugg boots and gloves|
An edited version of this article was published here, in my Column with Scleroderma News.
To read my articles:
Rare Disease Day 2018, Research - Taking Part in Clinical Trials, Click here
March Autoimmune Disease Awareness Month 2018, Click here
Global patient video, Click here
Expert Specialist Centres, Click here
2016 Rare Disease Day Patient Voice