Scleroderma Awareness Month 2016
DAY 18 Scleroderma Awareness Month: SKIN, HANDS, MOUTH, DENTAL
With diffuse scleroderma, most of the entire skin on the body will be affected.
Digital ulcers, calcinosis and pitting to the fingers makes for extremely painful, sensitive, not fit for purpose hands!
Every task, including the most basic eg. getting dressed, holding a pen / toothbrush / hairbrush / keys … everything, is extremely challenging for sore, delicate sclerodactyl hands.
Huge thanks to USA patient Karen for sharing her images.
As well as, check out USA patient Jacob, to see his surgical advances.
The soft tissue and skin of the mouth can also be affected.
Thanks to Sarah, Facebook MeandSclero, for sharing her image, to highlight the difficulty in mouth opening.
A dry mouth symptom can lead to mouth infections and tooth abscess.
I feel very blessed for the dental care team which I have, and I am extremely grateful for their patience and expertise with helping me manage my dental issues brought about by scleroderma.
So far, I have had 3 tooth extractions due to scleroderma. One of which, can be seen in the image at the top of the post.
My dentist joked with me at my last check up appointment, that my dental issues have improved, as it is just easier to have my teeth removed!… believe me, it really was a last resort on all 3 occasions, to have an extraction, having experienced pain unlike it.
To read more of my article about the skin:
An edited version of this article was published here, in my Column with Scleroderma News.
To read my articles:
Rare Disease Day 2018, Research - Taking Part in Clinical Trials, Click here
March Autoimmune Disease Awareness Month 2018, Click here
Global patient video, Click here
2016 Rare Disease Day Patient Voice