Thursday, 31 May 2018

GUM RECESSION / TOOTH EXTRACTION - Unmet Clinical Need. Scleroderma Awareness Month, June 2018. Scleroderma, Raynaud’s, Autoimmune, Rare Disease

Gum Recession / Tooth Extraction - Unmet Clinical Need 

Scleroderma Awareness Month, June 2018
Scleroderma, Raynaud’s, Autoimmune, Rare Disease

www.justgiving.com/fundraising/sclerodermaunit-royalfree
#SclerodermaFreeWorld #RaynaudsFreeWorld 


Some scleroderma patients may experience tightening of the skin to their face, as well as, thinning of the lips, with deep lines around the mouth. 

The soft tissue and skin of the mouth can also be affected. 



Mouth opening can be very difficult, making a dentist appointment timely and requiring a patient, understanding, scleroderma informed dentist. 


The change in facial shape and appearance can cause multiple complications. Including tooth loss due to the recession of the gums and tooth root reabsorption. 

A dry mouth symptom can lead to mouth infections and tooth abscess. 

On a personal level, I attend dental hygienist appointments every three months, combined with appointments with my dentist every six months. 

I feel very blessed for the dental care team which I have, and I am extremely grateful for their patience and expertise with helping me manage my dental issues brought about by scleroderma.  

It is also of huge comfort for me to know that should I have any dental problems, I will be viewed as an emergency case due to my diagnosis. 

So far, I have had 3 tooth extractions due to scleroderma. One of which, can be seen in the image at the top of the post. 

My dentist joked with me at my last check up appointment, that my dental issues have improved, as it is just easier to have my teeth removed!… believe me, it really was a last resort on all 3 occasions, to have an extraction, having experienced pain unlike it. 

I am now extremely careful with the foods which I eat, choosing softer, easier to chew foods, as the best option. Scleroderma is not having my two front teeth, or any more teeth!!  

Read More:  


Day 28 Scleroderma Awareness Month 2016. 

Day 18 Scleroderma Awareness Month 2016.  



 
An edited version of this article was published here, in my Column with Scleroderma News. 
June 2016.  


 






More Current Unmet Clinical Needs: 

CALCINOSIS, Click here  

SOFT TISSUE, ULCERS, Click here  

TELANGIECTASIA, Click here 

SCLERODACTYL HANDS, Click here   

INVISIBLE DISABILITY, Click here 

RAYNAUD'S, Click here 

GASTROINTESTINAL, Click here

 

Prof Chris Denton presenting a plaque to Kevin's daughter, Michelle, and wife, Debby, for funds raised in Kevin's memory for medical research at the Unit. Thanks to Michelle for the photo.
  
'Scleroderma Awareness Month 2018: Medical Research Fundraising, RIP Kevin East', Click here  
Global Patient Profiles Campaign Index, Click here
Importance of Medical Research and Awareness Raising, Click here
NIHR Video: 'My Experience of Clinical Trials', Click here 
Week 3, 2017 Patient Profiles: Medical areas of current interest, Click here
Week 2, 2017 Patient Profiles: Progress in Medical Research, Click here 
Week 1, 2017 Patient Profiles: Introduction to multi complex disease, Click here
Why I chose global Patient Profiles for my 2017 / 2018 Campaign, Click here 
 
2017 Global Patient Profiles Campaign Introduction, Click here 
 
'Being your own awareness advocate', Click here
 
Scleroderma Awareness Month Flashback 2017, Click here 
Scleroderma Awareness Month Flashback 2016, Click here 
My 2016 Campaign, A to Z: Scleroderma and Raynaud's diagnosis, Click here 
 
2016 Campaign Video, Click here 
March 2018 Autoimmune Disease Awareness Month, Click here 
World Scleroderma Day 2017, 29th June, Click here 
World Scleroderma Day 2016, 29th June. Origins of the date, Click here 
World Scleroderma Day 2015, 29th June. 

James Carver, myself, Prof Chris Denton

I had the pleasure of being a presenter and part of the European co-hort who gave a presentation at the European Parliament, Brussels, in honour of World Scleroderma Day 2015.  

I am immensely grateful to James Carver MEP for organizing this event in memory of his late wife Carmen, who sadly passed from Scleroderma.  

To view the presentation, Click here 


To view my article 'Why Global Collaboration is Important', Click here

All patients included within the global patient profiles campaign, highlight the URGENT need for an investment in medical research, as well as: 


Early Diagnosis 
Expert Specialist Centres 

Access to innovative medicines 

ALL being, crucial factors for best practice management and care.  

To read my articles:
Importance of an early diagnosis, Click here      
Taking Part in Clinical Research Trials, Click here     


The Importance of a Multi Disciplinary Medical ‘Dream Team’, Click here    


Expert Specialist Centres, Click here      
  
My Skin is Cured from Scleroderma, Click here       
UK Guidelines for Managing and Treating Scleroderma, Click here        

Fatigue, Click here         

Mobility, Click here      

Diet and nutrition, Click here     
 

Raynaud's, Click here   
This year, I am celebrating 20 years of being a patient at the Scleroderma Unit, The Royal Free Hospital - a world leading expert specialist, research centre. 
Sept 2017

Prof Chris Denton and I, Sept 2017
I am eternally grateful to the global scleroderma trail blazers Dame Prof Black and Prof Chris Denton, whose commitment and dedication to unlocking the scleroderma enigma, is nothing other than, superhuman. 
I am truly humbled and inspired by their work ethic. I am wholly appreciative for Prof Denton’s continued medical expertise and support, especially during my barrister qualifying years, 1997 - 2004. 
1st March 2004, I qualified as a self employed practising barrister. Further to having been told in 1997, by my diagnosing doctor, that I was looking at a 15month prognosis. 
I very much hope to utilise my professional skills and qualifications along with my patient experience, to help achieve the #SclerodermaFreeWorld dream, hoping to improve understanding and best practice, in the meantime. Read more, here
For latest updates follow: 
Facebook Page:
Twitter: @SclerodermaRF  @RaynaudsRf  
#SclerodermaFreeWorld           #RaynaudsFreeWorld
Living the dream, scleroderma style.  
Please DONATE to help fund medical research at The Scleroderma Unit, The Royal Free Hospital, London.  

100% of your monies will be used for medical research purposes only. No wages or admin costs. Thank You.
#HOPE 

Last Update: June 2018
 

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