|Prof Denton and I, Sept 2017|
|Raynaud's world trailblazer, Dr Kevin Howell and I, Sept 2017|
|Dr Hannah Sykes, Consultant Rheumatologist Southport Hospital, and I, Aug 2017|
|Hottest day of 2013 - I need to wear Ugg boots and gloves.|
Recently, I was appointed a Patient Public Voice on the NHS England CRG for Specialised Dermatology.
- Gum recession
- Soft tissue and ulcers
- Sclerodactyly hands
- Gastrointestinal issues
I'm living the dream, scleroderma style, with eternal gratitude to the world trailblazer superhuman Prof Chris Denton, my medical dream team and my non medical dream team.
Living the dream, scleroderma style.
An edited version of this article was published here, in my Column with Scleroderma News. December 2018.
To read my articles:
|The global Raynaud's trailblazer - Dr Howell and I, Sept 2017|
|Prof Chris Denton and I, Sept 2017|
|James Carver, myself, Prof Chris Denton|
I am immensely grateful to James Carver MEP for organizing this event in memory of his late wife Carmen, who sadly passed from Scleroderma.
To view my article 'Why Global Collaboration is Important', Click here
2016 Rare Disease Day Patient Voice
for the illumination of the rare disease patients’ plight.
Becoming a Patient Research Ambassador for the NIHR, Click here
If we only had more RESEARCH investment for Scleroderma, Raynaud's, Autoimmune Rare Disease, Click here
The Importance of Medical Research and Awareness to the Scleroderma, Raynaud's, Autoimmune Rare Disease patient, Click here