|Thanks to USA patient Sharon Esposito|
Including patients from all over the world, highlighting the best practice and management of the scleroderma patient, along with the current unmet clinical needs.
DAY 29, World Scleroderma Day, I focussed on the extremely brave USA child patient, Wyatt the Warrior.
The launch of the Journal of Scleroderma and Related Disorders (JSRD), at the 4th Systemic Sclerosis Congress, last year, is a most welcome advancement in the sharing of scientific data and understanding.
As again, this year, they are lighting Niagara Falls in blue and the Peace Bridge in teal.
If you can not experience this in person, you can watch it live via the Scleroderma Canada Facebook Page
Please comment below if there are any topics in particular, which you would like me to discuss.
However the experience remains one of my few patient highlights of the last 20 years.
To read my articles:
Rare Disease Day 2018, Research - Taking Part in Clinical Trials, Click here
March Autoimmune Disease Awareness Month 2018, Click here
Global patient video, Click here
Becoming a Patient Research Ambassador for the NIHR, Click here
If we only had more RESEARCH investment for Scleroderma, Raynaud's, Autoimmune Rare Disease, Click here
Expert Specialist Centres, Click here
World Scleroderma Day 29th June 2016, Click here
World Scleroderma Day 29th June 2017, Click here
Why Global Collaboration is important to the Rare Disease Patient, Click here
2016 Rare Disease Day Patient Voice