Scleroderma Skin Cancer and Other Skin Complications.
Raynaud's, Autoimmune, Rare Disease.
Surprisingly, my Raynaud's symptoms developed later.
|Global Scleroderma Trailblazer Prof Denton and I, Sept 2017.|
I have a daily symptom management routine that includes bathing and moisturising my skin.
For the bath, I use liquid petroleum (Oilatum Plus) and then, after towel drying, I use Hydromol emollient cream all over my body.
I refused to undergo a skin biopsy due to the time of year, as winter is my nemesis season.
The Effudix cream had caused my skin to inflame and break, bringing pain, and causing discomfort. However, these symptoms subsided after a few weeks.
|Post biopsy Sept 2016|
Lucky, in that, I have minimal internal organ damage. Lucky, in that, I continue to survive.
I have recently been added to their 'Hall of Fame' article .
Living the dream, scleroderma style.
An edited version of this article was published here, in my Column with Scleroderma News. November 2018.
To read my articles:
|The global Raynaud's trailblazer - Dr Howell and I, Sept 2017|
|Prof Chris Denton and I, Sept 2017|
|James Carver, myself, Prof Chris Denton|
I am immensely grateful to James Carver MEP for organizing this event in memory of his late wife Carmen, who sadly passed from Scleroderma.
To view my article 'Why Global Collaboration is Important', Click here
2016 Rare Disease Day Patient Voice
for the illumination of the rare disease patients’ plight.
Becoming a Patient Research Ambassador for the NIHR, Click here
If we only had more RESEARCH investment for Scleroderma, Raynaud's, Autoimmune Rare Disease, Click here
The Importance of Medical Research and Awareness to the Scleroderma, Raynaud's, Autoimmune Rare Disease patient, Click here