Rare Disease Day 2017 - Research, Raynauds, Scleroderma

RARE DISEASE DAY:

The theme to this years Rare Disease Day is Research

Rare Disease Day 2018 – Research, Taking Part in Clinical Trials. Scleroderma, Raynaud's, Autoimmune Rare Disease, Click here     

2016 Rare Disease Day Patient Voice

2016 Rare Disease UK Parliamentary Reception   


2017 Rare Disease Day Flashback  

2017 Rare Disease Day unmet clinical needs to the scleroderma patient

  

Rare Disease Day is a fantastic opportunity for the entire rare disease community to shine a spotlight on their reality, combining as one unified voice. Where, at least one commonality presides –  

Medical Research provides the brightest light

for the illumination of the rare disease patients’ plight. 

I highlighted other areas of medical research interest within Week 3 of my Patient Profiles Campaign for Scleroderma Awareness Month 2017. 

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