I wrote more about this, here
To read my article ‘March Autoimmune Disease Awareness Month’ 2017, Click here
Here is a 2016 Flashback
Where management of symptoms is controlled by symptom suppression as opposed to attacking the direct underlying cause.
The Journal has now published 4 volumes with the 5th volume, soon to be distributed.
The contents of the Journal show all of the differing approaches being taken to understand the biological processes and systems involved in the scleroderma Raynaud’s pathway.
See DAY 6 Scleroderma Awareness Month 2016 Campaign.
View my article and abstract excerpts on this, here
Albeit, the damage which the disease has had on my body, makes for a full time job, with looking after my symptoms.
Nor indeed, the cause being discovered, in my lifetime.
Infact, this is my ultimate dream, and my elixir to get better.
By changing my diet and attitude, along with the exceptional medical expertise of Prof Denton and my medical team, I am reversing my symptoms, slowly.
An edited version of this article was published here, in my Column with Scleroderma News. May 2017.
To read my articles:
Rare Disease Day 2018, Research - Taking Part in Clinical Trials, Click here
March Autoimmune Disease Awareness Month 2018, Click here
Global patient video, Click here
Becoming a Patient Research Ambassador for the NIHR, Click here
If we only had more RESEARCH investment for Scleroderma, Raynaud's, Autoimmune Rare Disease, Click here
Expert Specialist Centres, Click here
World Scleroderma Day 29th June 2016, Click here
World Scleroderma Day 29th June 2017, Click here
Why Global Collaboration is important to the Rare Disease Patient, Click here
2016 Rare Disease Day Patient Voice