2018 update: A few changes. Dr Frances hall of Addenbrooks hospital thinks that I probably never had Rhumatoid arthritis. As joints have remained the same.
I have sjogrens and have lost a lot of teeth.
I now have gone into pulmonary hypertension.
They are calling my condition Connective tissue disease with Pulmonary hypertension.
I still have scleroderma which no one knows the type.
To read my articles:
Rare Disease Day 2018, Research - Taking Part in Clinical Trials, Click here
March Autoimmune Disease Awareness Month 2018, Click here
Global patient video, Click here
Becoming a Patient Research Ambassador for the NIHR, Click here
If we only had more RESEARCH investment for Scleroderma, Raynaud's, Autoimmune Rare Disease, Click here
Expert Specialist Centres, Click here
World Scleroderma Day 29th June 2016, Click here
World Scleroderma Day 29th June 2017, Click here
Why Global Collaboration is important to the Rare Disease Patient, Click here
2016 Rare Disease Day Patient Voice