Investment in medical research is crucial for progress in scientific understanding.
And of course, PAIN. Making for the daily mantra ‘Ah great, another day to spend in bed’.
For, most autoimmune patients, and scleroderma patients alike, hearing ‘But you look so well’ is a welcome compliment, however, it can be extremely frustrating, when the actual reality, is that, you feel quite the opposite.
|Hottest day of 2013, Im wearing Uggs and gloves|
However, not all Raynaud’s patients will have an autoimmune condition, this is when it is known as primary Raynaud’s.
All of the patients reported exhaustion, swelling and pain to be current ongoing unmet clinical needs.
Huge thanks to the current president, Dr. Peter Lanyon, for his outstanding commitment to the rheumatological community as a whole.
An edited version of this article was published here in my Column with Scleroderma News.
To Read My Articles:
2017 Rare Disease Day Flashback
for the illumination of the rare disease patients’ plight.
If we only had more RESEARCH investment for Scleroderma, Raynaud's, Autoimmune Rare Disease, Click here
The Importance of Medical Research and Awareness to the Scleroderma, Raynaud's, Autoimmune Rare Disease patient, Click here
2018 Scleroderma Awareness Raising and Medical Research, Click here
|Prof Chris Denton and I, Sept 2017|
|James Carver, myself, Prof Chris Denton|
I am immensely grateful to James Carver MEP for organizing this event in memory of his late wife Carmen, who sadly passed from Scleroderma.
|The global Raynaud's trailblazer - Dr Howell and I, Sept 2017|