This annual display of nature showing off it’s true colours, provides a reminder that winter is on its way. And, winter, being mine, and every patient with a similar diagnosis, our Nemesis season.
|Hottest day of 2013|
Hence my absence from social media for the last month.
A thick, self made, padded bandage with minimal adhesive helps to protect the very tender, thin, red raw skin.
However, I know that when it comes to digital ulcers, I am very lucky, even though their pain and daily management is extremely soul testing.
For optimum patient care, 3 hallmarks preside:
The Raynaud's Unit, the Royal Free NHS Hospital, London, Click here.
To view the EULAR treatment guidelines, Click here
To view a thermal imaging video and equipment, Click here
All of your monies will be used for medical research purposes only, lead by the world trail blazer Dr Kevin Howell.
|Dr Howell and I, Sept 2017|
Planning for the Future, Click here
Rare Disease Day 2020:
Listen to my interview with John Smeeton, (Silver Fox), from the Royal Free Radio, here
Raise awareness and donate to medical research, order your #SclerodermaFreeWorld #RaynaudsFreeWorld tshirt here
Rare Disease Day 2020: NIHR 'Research gives hope to Rare Disease patients', Click here
Rare Disease Day 2019: 11am 97.4RockFM headlines, NO CURE, Click here
2017 Rare Disease Day Medical Research
2016 Rare Disease Day Patient Voice
provides the brightest light,
for the illumination of
the rare disease patients’ plight.
To read about medical research at the scleroderma unit, Click here
If we only had more RESEARCH investment for Scleroderma, Raynaud's, Autoimmune Rare Disease, Click here
The Importance of Medical Research and Awareness to the Scleroderma, Raynaud's, Autoimmune Rare Disease patient, Click here
2018 Scleroderma Awareness Raising and Medical Research, Click here
Unmet Medical Needs, Click here
Calcinosis Video, Click here
The scleroderma tooth fairy, Click here
Skin Cancer and scleroderma, Click here
|Prof Chris Denton and I, Sept 2017|
This year, 2020, I am celebrating 22 years of being a patient at the Scleroderma Unit, The Royal Free Hospital - a world leading expert specialist, research centre.
|Chat Magazine May 2019|
|James Carver, myself, Prof Chris Denton|
I am immensely grateful to James Carver, former MEP, for organizing this event in memory of his late wife Carmen, who sadly passed from Scleroderma.
#SclerodermaFreeWorld #RaynaudsFreeWorld #Research
100% of your monies will be used for medical research purposes only. NO wages or admin costs. Thank You.