|Margie Kugler, Australia|
I went to see my Doctor to be told that my symptoms were in my mind and probably a result from giving up smoking.
I decided to seek a second opinion.
She seemed unsure and edgy but assured me that she would refer me to the best specialists to answer any of my questions.’
The blood tests revealing specific antibodies.
Anti-centrome antibodies were the marker to say I was positive for CREST syndrome.
You are NOT having to be lead by the disease, instead be a manifestor of your own destiny, and evolve as a healthier, happier human being.
Plan a manageable day and include a ‘spoiling’ of yourself in a small or even large way.
For example, a mentor / great friend to talk to, often.
To read my articles:
Rare Disease Day 2018, Research - Taking Part in Clinical Trials, Click here
March Autoimmune Disease Awareness Month 2018, Click here
Global patient video, Click here
Becoming a Patient Research Ambassador for the NIHR, Click here
If we only had more RESEARCH investment for Scleroderma, Raynaud's, Autoimmune Rare Disease, Click here
Expert Specialist Centres, Click here
World Scleroderma Day 29th June 2016, Click here
World Scleroderma Day 29th June 2017, Click here
Why Global Collaboration is important to the Rare Disease Patient, Click here
2016 Rare Disease Day Patient Voice