|Jennifer Moss, UK|
I also had lumps on the left side of my abdomen, where, if I leant to the right, the lumps would be very visible!
The nurses next door to the pharmacy I worked in, thought I had sprained them somehow, so bandaged them up quite tightly -which didnt help!
They admitted me more because of my lumps, than my leg!
Distract your brain - try not to think about your situation, it'll only depress you!
Do not force yourself - if you feel too rough to do something, dont do it!
That I can go camping with my friends again
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Rare Disease Day 2018, Research - Taking Part in Clinical Trials, Click here
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Global patient video, Click here
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If we only had more RESEARCH investment for Scleroderma, Raynaud's, Autoimmune Rare Disease, Click here
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World Scleroderma Day 29th June 2016, Click here
World Scleroderma Day 29th June 2017, Click here
Why Global Collaboration is important to the Rare Disease Patient, Click here
2016 Rare Disease Day Patient Voice