Wednesday, 7 June 2017

Janet Swerbenski, USA, June Scleroderma Awareness Month 2017, Raynaud's, Rare Disease, Patient Profiles DAY 7

Janet Swerbenski, USA 
June Scleroderma Awareness Month 2017 Patient Profiles 

Janet Swerbenski, USA
Name:           Janet Swerbenski   
           
Location:       McHenry, IL USA

Janet Swerbenski, USA
Diagnosis:    
Raynauds, Scleroderma 2015 
Sjogrens, MCTD 2016

Age at diagnosis:    
49 years young

Where / who diagnosed you?:
Dr L Esch primary care Dr


What were your presenting symptoms?:

Fatigue, pain, swollen joints, digital ulcers, SOB- 3+ years seeing my old Dr I fired him. I got a new Dr, who, on my first visit, listened to my complaints, examined me (from head to toe, literally,) stepped out, came back and told me of her suspicions. She took blood and referred me to a dermatologist and rhuematologist etc.


Current reality: 

I was working full time, I am now on social security disability, on oxygen 2 lpm 24/7 taking Viagra, plaquinil, low dose prednisone + 25 or so other prescribed and OTC meds 


What are your 3 biggest current challenges due to your diagnosis?:

DISABILITY lugging the oxygen everywhere, and losing my ability to get up and just go




What are your 3 top tips for living with your diagnosis?:

Stay warm
Take it day by day
Get enough rest


What are your 3 wishes for the future?:

They would find a cure
Dr's would learn compassion & bedside manners
Healthcare was free for everyone   

Huge thanks go to Janet for sharing her scleroderma reality for #SclerodermaAwareness month. 

To read more about why I chose ‘Patient Profiling and Research’ as the focus of my 2017 campaign, Click here     

Why Research and Patient Profiles? Scleroderma Awareness Month 2017, Raynaud's, Rare Autoimmune Disease, Click here   

2017 INDEX Scleroderma Awareness Campaign Patient Profiles Click here    


INDEX to Scleroderma Awareness 2016 Campaign, Click here    



To read my articles  

Importance of an early diagnosis, Click here 

Taking Part in Clinical Research Trials, Click here

Expert Specialist Centres, Click here 

My Skin is Cured from Scleroderma, Click here 

UK Guidelines for Managing and Treating Scleroderma, Click here

World Scleroderma Day 29th June Click here  

Please donate to help fund medical research at The Scleroderma Unit where 100% of all of your monies will be used for medical research purposes only. Thank You.

June 2017 Total
DONATE     

Living the dream hoping for a cure

#SclerodermaFreeWorld #RaynaudsFreeWorld
#RareDisease #Hope #Belief 

Follow Raynauds Scleroderma Awareness Global Patients Facebook Page for latest updates 

Thanks to USA patient Sharon Esposito for sharing her wonderful creativity
Please use the icons below to share this article #SclerodermaAwareness  

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