|Jacob Vidal Davila, USA|
Name: Jacob Vidal Davila
Diagnosis: Diffuse Scleroderma
My hands had begun to become stiff, my face and mouth were slowly become a bit tight also. I was tested for everything.
I have had several small surgeries to help with infection due to ulcers and trying to open my hands a bit for functionality.
Stand tall and don’t back down, you are your own best fighter.
Big thanks go to Jacob for sharing his scleroderma Raynaud's experience, during Scleroderma Awareness Month.
To read my articles:
Rare Disease Day 2018, Research - Taking Part in Clinical Trials, Click here
March Autoimmune Disease Awareness Month 2018, Click here
Global patient video, Click here
Becoming a Patient Research Ambassador for the NIHR, Click here
If we only had more RESEARCH investment for Scleroderma, Raynaud's, Autoimmune Rare Disease, Click here
Expert Specialist Centres, Click here
World Scleroderma Day 29th June 2016, Click here
World Scleroderma Day 29th June 2017, Click here
Why Global Collaboration is important to the Rare Disease Patient, Click here
2016 Rare Disease Day Patient Voice