|Vanessa Cummings, UK|
Pins and needles in arms
Swollen and itching hands which were quickly tightening
Strange cottage cheese texture in under arms
Aching and painful joints
After various tests and paying for three visits he diagnosed limited Scleroderma and told me that it would have little to no effect on my life!
I read up on the Internet and was very shocked and surprised. I went to my GP and asked for a referral to the Royal Free hospital.
After mastectomy and chemotherapy my skin symptoms worsened drastically and my skin was completely solid, extremely painful and very itchy.
To read my articles:
Rare Disease Day 2018, Research - Taking Part in Clinical Trials, Click here
March Autoimmune Disease Awareness Month 2018, Click here
Global patient video, Click here
Becoming a Patient Research Ambassador for the NIHR, Click here
If we only had more RESEARCH investment for Scleroderma, Raynaud's, Autoimmune Rare Disease, Click here
Expert Specialist Centres, Click here
World Scleroderma Day 29th June 2016, Click here
World Scleroderma Day 29th June 2017, Click here
Why Global Collaboration is important to the Rare Disease Patient, Click here
2016 Rare Disease Day Patient Voice