|First UCF Scleroderma presentation November 2012|
While I have only been seeing my current GI Dr. since last year... and since being in remission, we are working together to see what we can do to make my damaged digestive system work better as it is missing 9 feet of small intestines. She is quite good... more knowledgeable about scleroderma than my previous 2 GI docs.
To read more about Roy, Click here
Click here, to view the UK Scleroderma Study Group Guidelines for Cardiac Management in Scleroderma.
To read my articles:
Rare Disease Day 2018, Research - Taking Part in Clinical Trials, Click here
March Autoimmune Disease Awareness Month 2018, Click here
Global patient video, Click here
Becoming a Patient Research Ambassador for the NIHR, Click here
If we only had more RESEARCH investment for Scleroderma, Raynaud's, Autoimmune Rare Disease, Click here
The Importance of Medical Research and Awareness to the Scleroderma, Raynaud's, Autoimmune Rare Disease patient, Click here
Expert Specialist Centres, Click here
World Scleroderma Day 29th June 2016, Click here
World Scleroderma Day 29th June 2017, Click here
Why Global Collaboration is important to the Rare Disease Patient, Click here
2016 Rare Disease Day Patient Voice