October 15-21 October is invisible disabilities week.
Raynaud's, and scleroderma can be invisible to the untrained human eye.
The general public can be totally unaware that the individual is suffering and just assume and label as ‘miserable’, ‘attention seeking’, ‘pessimistic’ and given a wide berth, when what they may just need is a bit of understanding and support.
These are not usually life threatening illnesses but can affect the quality of life such as pain 24/7, limited mobility, being unable to enjoy a good day out or extreme fatigue.’
I am reluctant to take any of the recommended narcotic therapies.
Since, the lower end of the pain killing spectrum have little effect, where as, the more potent drugs, cause me to vomit and send my head fuzzy.
To view the UK treatment guidelines for Raynaud’s Phenomenon, Click here
All of your monies will be used for medical research purposes only, lead being, the world trail blazer Dr Kevin Howell.
|Dr Howell and I, Sept 2017|
Facebook Page: Raynauds Unit Royal Free Hospital
To read my articles:
Rare Disease Day 2018, Research - Taking Part in Clinical Trials, Click here
March Autoimmune Disease Awareness Month 2018, Click here
Global patient video, Click here
Becoming a Patient Research Ambassador for the NIHR, Click here
If we only had more RESEARCH investment for Scleroderma, Raynaud's, Autoimmune Rare Disease, Click here
The Importance of Medical Research and Awareness to the Scleroderma, Raynaud's, Autoimmune Rare Disease patient, Click here
Expert Specialist Centres, Click here
World Scleroderma Day 29th June 2016, Click here
World Scleroderma Day 29th June 2017, Click here
Why Global Collaboration is important to the Rare Disease Patient, Click here
2016 Rare Disease Day Patient Voice