The Bowen’s skin patch re-presented, on my left knee.
|Aug 2017 outside my GP practice - Cumberland Surgery|
Previously, I would attend dermatology appointments at the Southport and Ormskirk hospital.
At the initial referral appointment in January, Dr Bassas, the Doctor, was most concerned to rule out a potential melanoma, advising me that this could kill me.
I refused to undergo a skin biopsy due to the time of year, as winter is my nemesis season.
The Effudix cream had caused my skin to inflame and break, bringing pain, and causing discomfort.
I was however, anxious, as I knew that I was seeing a different doctor. I was not sure if I was going to have to succumb to the surgical knife, further to his medical expert view.
Dr Anthony Downs examined the discoloured skin area on my knee and told me ‘Your skin cancer has cleared’. I was stunned and overjoyed, and what’s more – no biopsy!
I then showed Dr Downs other skin ‘spots’ for him to confirm that these were sun spots, as well as, Actinic Keratosis, on my forehead.
I hope that I provoked a similar reaction to Dr Downs, when I told him that I was now 14 years immunosuppressant free, other than bosentan for my Raynaud’s. He did look impressed / astounded!
However, I remain in a state of elation that my body is now free from the ‘additional extra’, Bowen’s disease, and that my ‘skin cancer has now cleared’.
As well as, reminding myself that ‘my job today is to simply get better’.
My personal unmet needs.
|RIP Chris Milan 10/6/59 - 4/3/17|
To take part in the online auction.
DONATE to Ben's Just Giving Page.
£3183.92 has been raised so far - Very Well Done, Ben, and, Thank You. DONATE
2020 UPDATE on the amazing fundraising achievements by the Milan family.
Eternal gratitude to them, in memory of the very much missed Chris.
Living the dream, Scleroderma Style.
An edited version of this article was published here, in my Column with Scleroderma News. March 2018.
Planning for the Future, Click here
Rare Disease Day 2020:
Listen to my interview with John Smeeton, (Silver Fox), from the Royal Free Radio, here
Raise awareness and donate to medical research, order your #SclerodermaFreeWorld #RaynaudsFreeWorld tshirt here
Rare Disease Day 2020: NIHR 'Research gives hope to Rare Disease patients', Click here
Rare Disease Day 2019: 11am 97.4RockFM headlines, NO CURE, Click here
2017 Rare Disease Day Medical Research
2016 Rare Disease Day Patient Voice
provides the brightest light,
for the illumination of
the rare disease patients’ plight.
To read about medical research at the scleroderma unit, Click here
If we only had more RESEARCH investment for Scleroderma, Raynaud's, Autoimmune Rare Disease, Click here
The Importance of Medical Research and Awareness to the Scleroderma, Raynaud's, Autoimmune Rare Disease patient, Click here
2018 Scleroderma Awareness Raising and Medical Research, Click here
Unmet Medical Needs, Click here
Calcinosis Video, Click here
The scleroderma tooth fairy, Click here
Skin Cancer and scleroderma, Click here
|Prof Chris Denton and I, Sept 2017|
This year, 2020, I am celebrating 22 years of being a patient at the Scleroderma Unit, The Royal Free Hospital - a world leading expert specialist, research centre.
|Chat Magazine May 2019|
|James Carver, myself, Prof Chris Denton|
I had the pleasure of being a presenter and part of the European co-hort who gave a presentation at the European Parliament, Brussels, in honour of World Scleroderma Day 2015.
I am immensely grateful to James Carver, former MEP, for organizing this event in memory of his late wife Carmen, who sadly passed from Scleroderma.
|The global Raynaud's trailblazer - Dr Howell and I, Sept 2017|
#SclerodermaFreeWorld #RaynaudsFreeWorld #Research
Alternatively, to make a direct donation to fund medical research via the Royal Free Charity, Scleroderma Unit, Click here
100% of your monies will be used for medical research purposes only. NO wages or admin costs. Thank You.