|The Royal Free Hospital, 27.9.17|
Furthermore, I remain overjoyed that my ‘skin is cured from scleroderma’, having not been able to stretch my arms, in 1997, due to the extreme skin tightness.
Which, even on the hottest of summer days, brings along many challenges, as well as, Raynaud’s attacks, due to any temperature decrease, regardless of the resulting temperature being ‘warm’.
|Hottest day of 2013|
These include annual heart and lung tests. which are carried out at my local hospital, here in Southport.
I am now living with the damage which, the disease at its most active, caused.
I have detailed more about my patient experience and journey, on Day 12 of my global patient profiles campaign, for Scleroderma Awareness Month 2018.
Although these unmet needs are not immediately life threatening, they cause havoc with the day to day quality of each patient’s life.
|Fellow patient Miss Universe, me, Christine and Lauren from NIHR team|
I am truly grateful for my medical ‘dream team’, made possible and available to me, by the world class leading healthcare system, the NHS.
|Prof Denton and I, Sept 2017|
|Dr Kevin Howell (Raynaud's world trailblazer)|
|Dr Sykes, Consultant Rheumatologist Southport Hospital||, August 2017.|
|Andrea, Southport Hospital Pharmacist, August 2017|
Happy 70th Birthday.
Diet and nutrition, Click here
Raynaud's, Click here
|Prof Chris Denton and I, Sept 2017|
|James Carver, myself, Prof Chris Denton|
I am immensely grateful to James Carver MEP for organizing this event in memory of his late wife Carmen, who sadly passed from Scleroderma.
To view my article 'Why Global Collaboration is Important', Click here