Scleroderma, Raynaud's, Autoimmune Rare Disease.
|NIHR Annual Report: Front Page|
|NIHR Annual Report, Case Study|
Including Med-Tech and The European Pharmaceutical Manufacturer quoting me, and naming Raynaud’s and scleroderma, in their headline story.
All of these trials were led by Prof Chris Denton, at the Scleroderma Unit, at The Royal Free Hospital.
I am not the most willing of participants of taking any drug, licensed or non licensed, at the best of times.
I have detailed more about my patient experience and journey, on Day 12 of my global patient profiles campaign, for Scleroderma Awareness Month 2018.
Although these unmet needs are not immediately life threatening, they cause havoc with the day to day quality of each patient’s life.
|Fellow patient Miss Universe, me, Christine and Lauren from NIHR team|
I am truly grateful for my medical ‘dream team’, made possible and available to me, by the world class leading healthcare system, the NHS.
Diet and nutrition, Click here
Raynaud's, Click here
|Prof Chris Denton and I, Sept 2017|
|James Carver, myself, Prof Chris Denton|
I am immensely grateful to James Carver MEP for organizing this event in memory of his late wife Carmen, who sadly passed from Scleroderma.
To view my article 'Why Global Collaboration is Important', Click here