Sadly, they are not a true certainty that the patient will respond optimally, since no two patients are alike, presenting with the same set of symptoms.
Any segment of the GI tract from mouth to anus can be involved, and GI symptoms are a frequent cause of morbidity.
In several cases, GI-tract involvement can progress to the point of malnutrition requiring parenteral nutrition.
GI-tract involvement in SSc contributes to disease-related mortality although mostly as a co-morbdity rather than direct cause of death.’
The second surgery was to add 'artificial' knuckles.
Some patients report a marginal improvement when taking the antibiotic Minocycline, but personally, I saw no improvement.
I have also spoken with patients who had undergone surgery for calcium removal, with the calcium only returning in time. I am not brave enough for this option being a reality for me!
My face has taken on its own dot to dot puzzle, which has emerged over the course of the last ten years.
I also have telangiectasia covering my trunk and the palm of my hands.
This includes my toes, feet, ankles, knees, hips, elbows, shoulder, neck, wrists, and hands.
These symptoms are an overlap with rheumatoid arthritis.
An edited version of this article was published here, in my Column with Scleroderma News. February 2017.
To read my articles:
Rare Disease Day 2018, Research - Taking Part in Clinical Trials, Click here
March Autoimmune Disease Awareness Month 2018, Click here
Global patient video, Click here
Becoming a Patient Research Ambassador for the NIHR, Click here
If we only had more RESEARCH investment for Scleroderma, Raynaud's, Autoimmune Rare Disease, Click here
Expert Specialist Centres, Click here
World Scleroderma Day 29th June 2016, Click here
World Scleroderma Day 29th June 2017, Click here
Why Global Collaboration is important to the Rare Disease Patient, Click here
2016 Rare Disease Day Patient Voice