Name: Misty Rushing
Raynaud's and Lupus year 2010
Limited systemic sclerosis year 2013
PAH year 2013, ILD and PF year 2015
Ashy facial appearance.
My lyme doc believed that the lupus was a manifestation of lyme disease.
I showed my doctors my nails and they were puzzled by their appearance.
I went to see a lyme specialist (different doc) named Dr. Klinghardt in Nov 2012 and spent a week at his clinic using holistic medicine as an intense treatment for lyme disease.
By February 2013 I knew I had something seriously wrong with me and needed to see a new doctor so I chose a new GP in March 2013 and after my checkup (bloodwork, EKG, physical exam) he referred me immediately to a cardiologist, who diagnosed me with PAH after an echo and heart cath, 2 weeks later.
I was started on Ad Circa and other cardiac medications as well as oxygen and went out on full disability.
1 on each index finger, one on right elbow, 1 in left knee- very squeaky when I move it, several in my toes and bottom of my foot.
I rarely have heartburn or GI issues- knock on wood!
I prioritize sleep, use an infared sauna, eat healthier, talk to a therapist once a month using Quantum Biofeedback, went to countless workshops on healing my childhood wounds, drank Ayahuasca with the Quero shamans in Peru in 2012, travelled to visit with John of God in Brazil in 2015 and 2016.
I use light therapy to assist with circulation (www.wholehealthlight.com) and had a series of IV Ozone injections and used a vibration plate to stimulate lymphatics.
Will I continue to improve or will I deteriorate again?
Do some intense inner work with a therapist and/or plant medicines.
There is usually an emotional component to autoimmunity.
I invite people to also discover their unique desires and dreams and find a way to achieve them.
Becoming self-aware is vital to recovery, without it is easy to succumb to depression and disability.
There are many cases of people with scleroderma getting well and living normal lives, but we don't hear about them because they aren't in the spotlight.
Perhaps no one is "cured" but what if they live normal or near normal lives with little disability? I want to hear from those people. I know they are out there.
To follow Misty's Facebook Group, Click here
|Prof Chris Denton presenting a plaque to Kevin's daughter, Michelle, and wife, Debby, for funds raised in Kevin's memory for medical research at the Unit. Thanks to Michelle for the photo.|
|James Carver, myself, Prof Chris Denton|
I am immensely grateful to James Carver MEP for organizing this event in memory of his late wife Carmen, who sadly passed from Scleroderma.
To view my article 'Why Global Collaboration is Important', Click here
All patients included within the global patient profiles campaign, highlight the URGENT need for an investment in medical research, as well as:
ALL being, crucial factors for best practice management and care.
Expert Specialist Centres, Click here
Diet and nutrition, Click here
Raynaud's, Click here
|Prof Chris Denton and I, Sept 2017|