|Deani Baillie, UK|
I saw a Vascular Surgeon as a private patient who did ultrasound and ordered bloods.
After seeking advice from others who have great understanding of Scleroderma, I am finally starting to put these behind me.
Numerous drugs trialled and 3 courses of Iloprost later, I am now on a path filled with positive people, knowledgeable clinicians, and my heart even though I can't say the same for my body, is ready to tackle whatever is thrown my way.
I know now, I will do all I can, to help minimise, the impact and negative experiences other may face when trying to come to a diagnosis.
I am now under the care of the Scleroderma Unit at The Royal Free Hospital, where I can honestly say, my experience has been completely different! A huge positive..
The specialist nurse was very informative and I left feeling that my rollercoaster was on the way up!
In 2015, I was honoured to be part of the medical team who devised the NHS Guidelines for treatment of digital ulcers in Systemic Sclerosis. Click here
I focussed on the treatment of digital ulcers on DAY 24 of Scleroderma Awareness Month 2016.
|Prof Chris Denton presenting a plaque to Kevin's daughter, Michelle, and wife, Debby, for funds raised in Kevin's memory for medical research at the Unit. Thanks to Michelle for the photo.|
|James Carver, myself, Prof Chris Denton|
I am immensely grateful to James Carver MEP for organizing this event in memory of his late wife Carmen, who sadly passed from Scleroderma.
To view my article 'Why Global Collaboration is Important', Click here
All patients included within the global patient profiles campaign, highlight the URGENT need for an investment in medical research, as well as:
ALL being, crucial factors for best practice management and care.
Expert Specialist Centres, Click here
Diet and nutrition, Click here
Raynaud's, Click here
|Prof Chris Denton and I, Sept 2017|