|Jen Wells, USA|
Limited Scleroderma / CREST Syndrome
Perhaps I lacked a certain understanding or awareness.
Everyone has things going on in their lives and just because we may not see it, be it physical or emotional, doesn’t make it any less real.
I see my other doctors as needed or twice a year for tests, these doctors include:
G.P., Cardiologist, Pulmonologist, Physical therapist, Endocrinologist, Nephrologist and I am currently looking for a new Gastro, Neurologist, Pain Doctor and Dermatologist and Immunologist/Allergist.
Allodynia, flares & inflammation, occasional bouts of depression, and the list goes on and on (as I’m sure I have left out a few things)... and of course the whole brain fog thing.
I have recently developed a sensitivity to steroids (oral & injectable) so pain management is incredibly difficult.
Humira was life changing and now I find myself once again, in bed constantly. A quick trip to the store or a simple outing will often take me a couple days to recover.
You don’t always realize how much a medication helps, until you are forced to stop taking it.
I mean come on, should you really need a 2 hour nap after a shower? I think not.
And getting dressed should not be an all day event, I’m talking sweats here, not getting glammed up.
It sounds silly but it can be anything from a piece of chocolate to a picture of a baby animal.
Huge thanks go to Jen for sharing her scleroderma reality and experience for Scleroderma Awareness Month, and for all that she does for her fellow patients, throughout the year.
We will never view you as being 'too much to handle', Jen.
Wishing you every success with your new treatment plan and regime.
|Prof Chris Denton presenting a plaque to Kevin's daughter, Michelle, and wife, Debby, for funds raised in Kevin's memory for medical research at the Unit. Thanks to Michelle for the photo.|
|James Carver, myself, Prof Chris Denton|
I am immensely grateful to James Carver MEP for organizing this event in memory of his late wife Carmen, who sadly passed from Scleroderma.
To view my article 'Why Global Collaboration is Important', Click here
All patients included within the global patient profiles campaign, highlight the URGENT need for an investment in medical research, as well as:
ALL being, crucial factors for best practice management and care.
Diet and nutrition, Click here
Raynaud's, Click here
|Prof Chris Denton and I, Sept 2017|