|Nicola Whitehill, UK|
I am now 14 years chemo – immunosuppressant free, with my only medication being bosentan 125 mg twice a day, which has made a remarkable improvement on my digital ulcers.
|Gloves and Uggs all year round|
|May 2015 GSK UK HQ|
To read more about Living the dream being your own Raynaud’s Scleroderma rare disease patient advocate, Click here
|RIP Anne 31.5.42 - 2.10.14|
As well as, it should not be a postcode / ZIP code / Country lottery as to the best management and treatment of scleroderma.
|Rare Disease UK Parliamentary Reception, Rare Disease Day 2016|
|Fellow patient Jeannie (Miss Universe), Me, Christine and Lauren from NIHR, March 2018|
|Prof Chris Denton presenting a plaque to Kevin's daughter, Michelle, and wife, Debby, for funds raised in Kevin's memory for medical research at the Unit. Thanks to Michelle for the photo.|
To view my article 'Why Global Collaboration is Important', Click here
All patients included within the global patient profiles campaign, highlight the URGENT need for an investment in medical research, as well as:
ALL being, crucial factors for best practice management and care.
Expert Specialist Centres, Click here
Raynaud's, Click here
|Prof Chris Denton and I, Sept 2017|