|Nicola Whitehill, UK|
I am now 14 years chemo – immunosuppressant free, with my only medication being bosentan 125 mg twice a day, which has made a remarkable improvement on my digital ulcers.
|Gloves and Uggs all year round|
|May 2015 GSK UK HQ|
To read more about Living the dream being your own Raynaud’s Scleroderma rare disease patient advocate, Click here
|RIP Anne 31.5.42 - 2.10.14|
As well as, it should not be a postcode / ZIP code / Country lottery as to the best management and treatment of scleroderma.
|Rare Disease UK Parliamentary Reception, Rare Disease Day 2016 |
|Fellow patient Jeannie (Miss Universe), Me, Christine and Lauren from NIHR, March 2018 |
|Prof Chris Denton presenting a plaque to Kevin's daughter, Michelle, and wife, Debby, for funds raised in Kevin's memory for medical research at the Unit. Thanks to Michelle for the photo.|
Planning for the Future, Click here
Rare Disease Day 2020:
Raise awareness and donate to medical research, order your #SclerodermaFreeWorld #RaynaudsFreeWorld tshirt here
Rare Disease Day 2019: Leaving a Legacy Gift, Click here
Rare Disease Day 2019: 11am 97.4RockFM headlines, NO CURE, Click here
2017 Rare Disease Day Flashback
provides the brightest light,
for the illumination of
the rare disease patients’ plight.
To read about medical research at the scleroderma unit, Click here
If we only had more RESEARCH investment for Scleroderma, Raynaud's, Autoimmune Rare Disease, Click here
The Importance of Medical Research and Awareness to the Scleroderma, Raynaud's, Autoimmune Rare Disease patient, Click here
2018 Scleroderma Awareness Raising and Medical Research, Click here
Unmet Medical Needs, Click here
Calcinosis Video, Click here
The scleroderma tooth fairy, Click here
Skin Cancer and scleroderma, Click here
|Prof Chris Denton and I, Sept 2017|
|Chat Magazine May 2019|
|James Carver, myself, Prof Chris Denton|
I am immensely grateful to James Carver, former MEP, for organizing this event in memory of his late wife Carmen, who sadly passed from Scleroderma.
|The global Raynaud's trailblazer - Dr Howell and I, Sept 2017|
#SclerodermaFreeWorld #RaynaudsFreeWorld #Research
100% of your monies will be used for medical research purposes only. NO wages or admin costs. Thank You.