Sarah
Jatto, UK.
Scleroderma Awareness Month 2018.
Raynaud's, Autoimmune Rare Disease.
 |
| Sarah Jatto, UK |
Name: Sarah
Jatto
Location: London
Diagnosis: Systemic
Scleroderma
Year of diagnosis: 2009
Age at diagnosis: 19
Where / who diagnosed you?
Rheumatologist at
Chelsea & Westminster Hospital
What were your presenting symptoms?
Swollen fingers.
Swollen face.
Hypo depigmentation to
my skin.
Tightness of face,
mouth, torso and arms.
Raynaud's.
How long did it take for you to be diagnosed
after first symptoms?
It took 2-3 years to be
completely diagnosed.
When patches appeared
on my face my doctor treated it as a “virus” from the sun and gave me Canesten.
When I realised the
“virus” patch was not healing I revisited my GP. Upon arriving, she noticed my
swollen face and hands, sent me for a blood test and later a vascular
surgeon.
2017 reality
9 years of having
Scleroderma and I feel it has stabilised.
Current SYMPTOMS:
I still suffer with
Raynaud’s and, severely.
I have contracted
fingers, hypo depigmentation and scarred lungs.
I currently take
Methotrexate, prednisolone, folic acid, omeprazole and fluoxetine.
What are your 3 biggest current challenges due to your diagnosis?
Getting dressed.
Acid reflux.
Raynaud’s.
What are your 3 top tips for living with your diagnosis?
Take one day at a time.
Keep stress levels down.
Rest often.
What are your 3 wishes for the future?
Find the cause of
Scleroderma.
Find a cure.
For patients to live
happily ever after Scleroderma.
Scleroderma is very
unpredictable, it takes a lot of listening to your body, understanding it,
knowing your boundaries and not surpassing them.
June 2017.
June 2017.
2018 UPDATE:
Current SYMPTOMS:
Raynaud's, stiffness, rheumatoid arthritis.
Current MEDICATIONS:
Methotrexate, Prednisolone, Fluoxetine, Folic Acid and Omeprazole.
RESEARCH 2018:
Have you taken part in a research trial?
No
IN BETWEEN MEDICAL APPOINTMENTS:
I am kept bust with my Me and Sclero Awareness raising.
IN BETWEEN MEDICAL APPOINTMENTS:
I am kept bust with my Me and Sclero Awareness raising.
Huge thanks go to Sarah for sharing her
scleroderma reality and experience in such detail, for scleroderma awareness
month.
And, HUGE Thanks to Sarah for her amazing awareness efforts and her generosity to the Just Giving Page for the Scleroderma Unit, where 100% of the monies will be used for medical research purposes only.
And, HUGE Thanks to Sarah for her amazing awareness efforts and her generosity to the Just Giving Page for the Scleroderma Unit, where 100% of the monies will be used for medical research purposes only.
To follow Sarah’s ‘Me&Sclero’ Facebook
Page, Click here
You can also follow 'Me&Sclero' on Twitter
and Instagram.
To view my article 'Why Global Collaboration is Important', Click here
All patients included within the global patient profiles campaign, highlight the URGENT need for an investment in medical research, as well as:
ALL being, crucial factors for best practice management and care.
Raynaud's, Click here
To read my articles:
Current Unmet Clinical Needs 2018, Click here
CALCINOSIS, Click here
GUM RECESSION, TOOTH
EXTRACTS, Click here
SOFT TISSUE, ULCERS,
Click here
TELANGIECTASIA,
Click here
SCLERODACTYL HANDS,
Click here
INVISIBLE
DISABILITY, Click here
RAYNAUD'S, Click here
GASTROINTESTINAL,
Click here
 |
| Prof Chris Denton presenting a plaque to Kevin's daughter, Michelle, and wife, Debby, for funds raised in Kevin's memory for medical research at the Unit. Thanks to Michelle for the photo. |
'Scleroderma
Awareness Month 2018: Medical Research Fundraising, RIP Kevin East', Click here
Global Patient
Profiles Campaign Index, Click here
Importance of Medical
Research and Awareness Raising, Click here
NIHR Video: 'My
Experience of Clinical Trials', Click here
Week 3, 2017 Patient
Profiles: Medical areas of current interest, Click here
Week 2, 2017 Patient
Profiles: Progress in Medical Research, Click here
Week 1, 2017 Patient
Profiles: Introduction to multi complex disease, Click here
Why I chose global
Patient Profiles for my 2017 / 2018 Campaign, Click here
2017 Global Patient
Profiles Campaign Introduction, Click here
'Being your own
awareness advocate', Click here
Scleroderma Awareness
Month Flashback 2017, Click here
Scleroderma Awareness
Month Flashback 2016, Click here
My 2016 Campaign, A
to Z: Scleroderma and Raynaud's diagnosis, Click here
2016 Campaign Video, Click
here
March 2018 Autoimmune
Disease Awareness Month, Click here
World Scleroderma Day
2017, 29th June, Click here
World Scleroderma Day
2016, 29th June. Origins of the date, Click here
World Scleroderma Day
2015, 29th June.
 |
| James Carver, myself, Prof Chris Denton |
I had the pleasure of being a presenter and part of
the European co-hort who gave a presentation at the European Parliament,
Brussels, in honour of World Scleroderma Day 2015.
I am immensely grateful to James Carver MEP for organizing this event in memory of his late wife Carmen, who sadly passed from Scleroderma.
I am immensely grateful to James Carver MEP for organizing this event in memory of his late wife Carmen, who sadly passed from Scleroderma.
To view the presentation, Click here
To view my article 'Why Global Collaboration is Important', Click here
All patients included within the global patient profiles campaign, highlight the URGENT need for an investment in medical research, as well as:
Early Diagnosis
Expert Specialist Centres
Access to innovative medicines
ALL being, crucial factors for best practice management and care.
To read my articles:
Raynaud's, Click here
This year, I am celebrating 20 years of being a
patient at the Scleroderma Unit, The Royal Free Hospital - a world leading expert specialist, research centre.
 |
| Sept 2017 |
 |
| Prof Chris Denton and I, Sept 2017 |
I am eternally grateful to the global scleroderma
trail blazers Dame Prof Black and Prof Chris Denton, whose commitment and
dedication to unlocking the scleroderma enigma, is nothing other than,
superhuman.
I am truly humbled and inspired by their work
ethic. I am wholly appreciative for Prof Denton’s continued medical expertise
and support, especially during my barrister qualifying years, 1997 -
2004.
1st March 2004, I qualified as a self
employed practising barrister. Further to having been told in 1997, by my
diagnosing doctor, that I was looking at a 15month prognosis.
I very much hope to utilise my professional skills
and qualifications along with my patient experience, to help achieve the
#SclerodermaFreeWorld dream, hoping to improve understanding and best practice,
in the meantime. Read more, here
For latest updates follow:
Facebook Page:
Twitter: @SclerodermaRF @RaynaudsRf
Google Plus: RaynaudsSclerodermaAwarenessGlobalPatients
#SclerodermaFreeWorld
#RaynaudsFreeWorld
Living the dream, scleroderma style.
Please DONATE to help
fund medical research at The Scleroderma Unit, The Royal Free Hospital, London.
100% of your monies will be used for medical
research purposes only. No wages or admin costs. Thank You.
#HOPE
Last Update: June 2018
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